So I talked to the Mama today (okay yeah - I've called her 4 times since she left work at 11:30) and she now has a wheeze - new this week. It's like I can hear the cancer. She feels worse every day, and that part just kills me. I would do anything to take away her suffering.
I guess we're all enduring the worst part right now, which is the waiting. Side effects from treatment would be welcomed at this point. Pain from the disease itself is a whole other animal.
Mom's good friend (and mine) Carla Nemec is coming to NY today, staying here for about a week, then two days later her friend Katrin will be here, then soon after that, Clancy. So yay for all that!
Carla will go with us tomorrow to Sloan, so there'll be 3 sets of ears listening to that oncologist. I'm actually thinking of recording it. Am I nuts? Probably.
Thanks everyone for the overwhelming love and support. Til soon.
2 comments:
sarah, i have a LOT of friends with cancer -- i've been teaching yoga to people with cancer at UCSF for nearly three years now. in my experience, the waiting is indeed the most emotionally challenging part because there is nothing to DO yet. waiting for results and making treatment decisions, those are always the times when my students/friends express the most stress and fear. i hope it helps to hear that. i am sending love and prayers to you all every day, and am working on leads for good complementary supportive care through my community here.
much love,
kristie
It's not uncommon to record a meeting with a doctor concerning a serious illness. Janet's doctor would not be at all surprised if you did. I found a good page about preparing for your visit tomorrow. It gives some very sound advice (and recommends a recorder.)
http://www.guidesmith.org/going-to-the-doctor
My love and thoughts are with all of you.
-Jack
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