Thursday, March 13, 2008

first dose of chemo

So yesterday was pretty amazing, I have to say. Mom was a certifiable rockstar - holding true to the pattern thus far.

We arrived at Sloan around 8am for Mom's 8:15 appointment with Dr. Pietanza. Our friend Susannah (daughter of Gina Karlsson who used to babysit Clancy and Jennifer and certifiable rockstar in her own right) joined us and was there all day with us - made a huge difference. They took Mom's vitals. She has dropped more weight, which we all kind of knew, and her blood pressure is a bit low, but otherwise she is doing well. Dr. Pietanza filled us in again on what to expect with the chemo (hair loss, some nausea, possible pain in the bones and joints, fatigue). It turns out that Mom will have treatment once every THREE weeks, not once every two weeks. She also listened to Mom's lungs and said that they sound much better now than the last time she saw her - mid-February. Mom will have another appt with Dr. Pietanza in two weeks.

We went back to the waiting room for a bit after the exam, and then we were brought back to the "chemotherapy suite" - a suite indeed! We had our own little room - given the option, Mom wisely chose a bed over a chair - with a lovely sliding door and little wood cutout window frames, plants in the window. It was just a really nice room, serene, pleasant, and as Susannah put it "like a Japanese hotel room".

We met Sarah, Mom's fabulous nurse, who is my exact age, super sweet and really bright. Sloan makes an effort to hook each patient up with the same nurse for each treatment, so that's kinda cool. I like the consistency. She did a "teaching session" with us, talked more about the side effects, discussed the different anti-nausea medications, and also went over the plan to decrease the steroids. It looks like Mom will be off steroids completely by early April.

So then Sarah started an IV after finding an appropriate vein (good times!), and then administered a saline solution to Mom along with some "pre-meds"to help prep her veins and system for the chemo. Susannah and I jumped out at that point to grab some lunch, and Sarah waited for our return before she began the chemo. So at about 2pm they started giving Mom the first part of the chemo cocktail, which was Taxol. At the start of each chemo treatment, there will always be two nurses in the room: one to check Mom's info & the drug info on a chart and the other to verify that the same exact info is on the drug itself, before administering it. Pretty cool.

So the Taxol took about 3 hours, during which time Mom ate lunch (Sloan provides lunch when there's a long treatment...she had a cobb salad and ate every last bite. I took a picture of the empty container and will try to post it later!). She also slept for about 1.5 hours of it, which was totally amazing and wonderful. Sarah stayed with us for the first 15 minutes of the Taxol part, because she said if Mom were going to have a bad reaction it would happen then. She slept and ate so needless to say, she was fine. After the Taxol they gave her a bit more saline, followed by the Carboplatin, which took about 30 minutes. We all applauded when she finished the Carboplatin - first treatment DONE!

I wrote out a new chart for Mom so she knows which drugs to take when, and so far so good. She had a little urpiness but was mainly just tired after we left. She had dinner, went to sleep, and successfully took her meds this morning.

All is well.

8 comments:

Unknown said...

Hey Sarah,

I know from good days and bad. The bad days can be very defeating, but that's the roller coaster of any kind of recovery. And Jennifer is absolutely right. You will have bad days too. But you have to take care of yourself. If you crash then it becomes difficult for you to help your mom. Especially if you come down with something. That was a big lesson I learned with my mom. And that's what we're all here for, to pick up the slack when you need a break. I'm just a phone call away.

Lots of love to you,

Jeremiah

Anonymous said...

wahooo! go go magic healing janet! go go sloan!

love,
kristie

csn said...

Hooray!!! Happy to hear all went so well with the first chemo treatment. Thank you Susannah for being with Janet and Sarah and giving your support during another "first" experience. Though I only met you the one time, I can't think of anyone more perfect to help hold them up thru this experience.

Like Katrin and many others, I was thinking about Janet all day yesterday. I kept envisioning Janet as a newborn baby wrapped in a beautiful blanket composed of a kaleidoscope of colors. Each color represented one of Janet's friends/loved ones. The blanket glowed with warmth and colorful beams of light (just like our Janet.) This is how I will picture Janet as she faces each new challenge. I'm so thankful for the many "colors" embracing and encouraging our ROCKSTAR!

Sarah, as I've said many times, YOU ARE AMAZING!!! You are definitely your "mother's daughter." I'm very thankful Clancy was there to help and share what I'm sure were many lovely moments with Mom and also happy Jennifer will be there soon. You are carrying so much on those lovely shoulders and we're all here to help as we can. As you've asked your mother to let you know when your help is needed, please do the same with us. Though many of us are distant in miles, we want to help in anyway we can. I love you so much and will continue to pray for God's strength and love to surround each of you.

Sarah and Jennifer...thank you a million times over for keeping us updated on the blog. You both do such a fabulous job in providing us our "lifeline" to Janet. I love you, I love you, I love you...Carla

Unknown said...

Yeee Haaa!!! Of course Miss janet was a ROCKSTAR!!! But Sarah, you have been such a shining star though all of this! I am so happy that all of you were there together and am so impressed with Sloan and their methods and actual CARE for Janet!!! It truly makes a difference! And J - I am so thrilled that you had your ENTIRE Cobb Salad - it just brought me back to the days in the kitchen at bn.com wolfing down that potato salad - haaaa!!!! My love to you all!!! Tons of hugs & kisses!

Steven Patterson said...

WOOHOO! Getting the call from your mom yesterday was so great (I was actually in rehearsal when she first attempted to phone, but I was able to get back to her about 15 minutes later). Also VERY happy to hear the treatments are getting spaced out a bit more. Had some time with Joe & Bill in SF last weekend and they send all their love and good wishes as well. It's really difficult for me to be so far away during all this - I wanna be right there cheering y'all on. Keep pluggin', all of ya. I'll be back to join you again soon.

Anonymous said...

Thanks Sarah for keeping us all up to date. You rock girl. I'm glad Janet is sleeping.
Love
Bern

Gemma Whelan said...

Hi Sarah,

When I chatted with Janet on the phone yesterday she sounded so fabulous and so up, post-chemo. You would think she just returned from a spa!
The care is so amazing and CARE-full!
And that includes YOU Sarah.
It will be great to have Jennifer and entourage to give you a bit of a breather.
I told your Mum that this feels a like a "speed-through" rehearsal, opening night is full recovery! She laughed gloriously at that!

Sending you love and hugs as always,
Gemma

Unknown said...

You ALL are amazing. I feel grateful and moved by all you are going through. I wanted to let you know that we are making our 'get out of town' plans and Jennifer and family are more than welcome to stay at our place (first or second stop in Brooklyn on the 2/3/4/5/A/F). We have a 2 bedroom = queen sized bed, single bed and a crib. Most of the time we take our dog with us though there may be one or two trips when she stays here.

Anyways, let me know if it is helpful to tell you our plans so perhaps Jennifer can come and have a place to stay.

With huge love and admiration
Eva (burgess)