Yesterday was a bad day, and even though I know it's not the case, it made me feel all alone and I kind of fell apart. Mom was nauseous all day and couldn't get out of bed yesterday, couldn't walk across the room to take her meds, so I ended up leaving work early to help her with that (after sitting at work worrying like a cat in a room full of rocking chairs). We heard from the doctor in the afternoon and found out the nausea was due to the reduction in her steroid intake - happened too fast for her system, apparently.
But I'm frustrated because, up to now, I thought that she was able to tell me when she really needs me - she has done it a few times so far. But yesterday she couldn't do that and it made me panic - like oh okay, I need to read between the lines to figure out when "I'm okay Sarah" actually means "I need you - please come over". I told her - as my friend Jutta said - that it's fine to tell other people that she's okay when she's not, but she HAS to tell her family, and especially me since I'm here and can be there.
I'm a little bit lost today - lost, scared, and feeling very alone. I had a good talk with Mom's friend Jennifer last night and she reminded me that I'm going to have good days and bad days just like Mom will. I guess I didn't really think about that, but she's totally right.
Thanks everyone for all of the calls, cards and support. It's great to see how much love is out there.
I will go over to her apt tonight after my internship to spend the night, take her to chemo in the morning. I'll find out all of the details of chemo tomorrow and try to report back then, but as a reminder to those who want to visit (and I'm sorry if this sounds at all harsh): please make sure you're in good health before you visit her. From my understanding, chemo kills the good and bad cells all at once, so her system will be more susceptible to infection, sickness, etc. than usual. Don't mind me - protective as usual.
Jennifer comes to town with Oona on Saturday morning and I feel like I'm crawling through the desert, trying to make it to that day. She'll be here for two weeks and I can't wait.
9 comments:
Sarah,
You're being so brave and my heart goes out to you all. I hope that you feel less alone and lost today and if I can help in any way please call on me.
xoxo,
Kat
sarah, love and love and love to you. and your request about good health is absolutely sound. hand-washing really does save lives. praying for you and janet and all who love you every day...
*kisses*
kristie
Sarah,
Today is my son's birthday. Our children are the most precious gifts from the gods and you are a star unto yourself.
One day at a time, honey.
All my love to the sparkle of NYC - Janet Ward.
With love and tons of blue roses,
Erma
Sarah...
It is so hard to hear that little thing in the voice that says, I need you.
My own mother-in-law, independent, strong-willed and somehow midwestern despite her years in Oregon, doesn't have trouble saying it as much as knowing it herself enough to say it.
I know when I need a little extra something, I'm terrible at asking for it mostly because I'm always pretending that I can handle anything.
Hang in there. Thoughts with you and Janet.
malachy
you're a superbrave rockstar, sarah, just like your mama. she is lucky to have you. love to you both.
Sarah,
You rock!
The apple doesn't fall far from the tree!
Will send all best wishes for the first chemo tomorrow and speed those days until Jennifer arrives to back you up and give you a breather.
Mind yourself!
And huge love as always to Janet.
Love,
Gemma
Dear Sarah:
All your feelings are valid and I love and support everything you're feeling. Let em out. You know you can call me at any time and I'll just listen. I'm here for you sweetie.
Love
Bernadette
626-578-7381
sarah love.. my heart goes out to you now & always.. i know how hard it is to say 'i need you'.. i always feel that anything that happens i can handle.. my stubborn switzer upbringing.. now i've had to ease up a little & accept that there really are times.. maybe your mom will too.. in the meantime, you are so astute to know about reading between the lines.. even tho i'm far away, if you need me... love you..keep up the good work..
Sarah -
Thank you so much for your honest and soul-bearing words! We are all lucky to have a Sarah and Janet and Clancy and Jennifer in our lives! Please know that anything I can do to help, please call on me. That's what friends do...All my love to you & your ROCKSTAR mom...xxx Alexandra
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