Well, I don't think that anymore, so I guess I should post again. She goes from the mask to the tube and back again, threw up several times yesterday and the day before, can barely move from bed (although did today, once), and is recovering from hives she got from an allergy she developed to one of the antibiotics. She's also more, I don't know--Sarah and I are using the word "floaty." Her eyes do this strange REM sleep looking-for-something-in-space thing. Her sentences trail off. She goes back and forth between very lucid and really out of it. My grampa says she's just tired, and maybe that's true. She had three radiation treatments this week, and will have another tomorrow and the last one on Sunday or Monday. Then, supposedly, we wait seven days and she gets another dose of chemotherapy, but we can't imagine her getting to a state where that's possible: you have to be able to walk through the door to get chemo.
Oona and I are still in New York--I got alarmed by the floatiness, I guess; it just seemed wrong to leave. We're staying in Brooklyn through the weekend, then moving in with Sarah till Friday and trying Operation Get Oona to Sleep in the Kitchen again. If anyone is up for staying with her in Sarah's East Village place some night so we can have a sister date and process a bit, please let me know. She actually sleeps at night now, hooray!
And for a bit of levity, here is a photo of Oona enjoying a very amazing pumpernickel bagel in Brooklyn today:
9 comments:
Please know that I am thinking of you all so much - and please give Janet a kiss from me. Much Love, Alison
It looked like she was sucking down an oyster to me. Oona is such a beautiful little girl even with bagel in her mouth.
Oh, Jennifer I am so sorry to hear about Janet's set back. If only there was something I could do besides sending you all my love and hope for the best. I know this is hard for you all, but as has been said so many times before, you three are a remarkable support team for your Mom and it is a great comfort to her.
tough stuff. man, i'm glad you all are together for each other and janet. i'm with constance.......what else can we do but pray and send good thoughts......but it sounds so trival and surely "not enough". xoxo
All - I'm so sorry that I wasn't able to reach you before I left today. I know that you and the doctors are doing everything they can for Janet, and I'm sure that your presence there gives her additional strength and comfort. Please give Janet a big hug from me, and take care of each other during what I'm sure is a difficult time. All my love - Katrini
I had a wonderful visit with Janet on Friday. I was so lucky to meet Gary. He came while I was there. I read Janet some Tennessee Williams and her mail. We joked and laughed. She was completely lucid but I know she must have been exhausted. I tried to get her to close her eyes and rest while I read but the language of Williams was too beautiful. So, I abandoned that idea. I left her my guardian angel pendant that came from Sedona many, many years ago. She will stay with Janet. I wish I would be in NY longer, I'd watch Oona. When I'm back, I'll let you know.
Love to you all.
Just keep hoping the horrible stuff she's having to endure is helping eliminate some of the other horrible stuff & that sh'es going to get back to a place where stable and holding is the norm again rather than the exception. My heart's right there even if my body's still down in Florida. Be back soon.
Well, Oona is a charmer and if you could put that photo into an IV drip, Janet would recover in an instant. I'm sure that the floatiness is due to a combination of many things: drugs, drugs, drugs, being in the hospital (and not at home), the result of exhaustion from fighting this shitty disease, and trying her best to pull it together for her adoring family and friends. As Grampa said, maybe she just needs a good rest. Take some of that advice for yourselves as well.
Please give my love and a great big hug/kiss to Our Shining, Beautiful Star. Janet is One Lucky Gal to have these three amazing and devoted children and all of these cool, attentive friends who envelop her in love and positive vibes. But then, really, what does one expect? Janet is an incredible, caring, loving woman, who has a talent for making each of us feel like we are seen, heard, and loved. Love and peace to Janet, Jennifer, Sarah, Clancy, her precious grandchildren, and each of you who are members of the Intergalactic Janet Ward Fan Club of which I am a proud and devoted member.
Like everyone else I add my thoughts and best wishes and love to you all and to Janet. It's wonderful you are all there and I hope you and Sarah can get away for some down time.
The Oona picture is adorable!
Please give a gentle kiss and hug to Janet from me.
Mind yourselves (as we say in Ireland),
Love,
Gemma
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